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Autism speaks…

Posted by  ·  June 2, 2009  ·  Last Updated: June 2, 2009

A

Well I have been putting off this post for  weeks now.  Some of you may have noticed posting has slowed greatly around here.  My family has been experiencing some difficulties.  I thought I could just keep “blogging” through as I normally do. For the most part I try to keep this blog a happy place. Often it is my counter balance to a very stressful life. I think I have only mentioned it once. Today I finally decided that really wasn’t helping anybody and in many ways  I am not being authentic by pretending everything is always okay. We have been receiving a tremendous amount support from our friends and in turn if there is anyway possible, we want to pass this goodness forward. We hope in some little way that in sharing our struggles at least one of you will know you are not alone.

colorado1

A

My oldest son, whom is now 16, has Asperger’s Syndrome.  Over the years we have certainly had our ups and downs. For the most part things have been manageable, but for the last couple of months it has been difficult.  We finally realized we could no longer help our son alone.

colorado22

A

So as I write this I am in Denver with my son.  He is in a day treatment program at the Children’s Hospital. It has been bumpy and we often don’t know what the day will bring. We have been here over two weeks. Thankfully my husband and other children were able to join us for one week and experience  some family therapy that was wonderful for building our family back up. I think this will be our final week here, fingers and toes crossed.

colorado3

A

I guess my point in sharing this is to let you know if you find yourself in our spot, you are not alone. I wish I could say something profound to make your situation easier if you too find your family in crisis — maybe that will come later.

A

We are learning some valuable lessons:

Rely on Friends

This would have been far to difficult to handle alone. From the former autism consultant graciously opening her home (indefinitely –poor thing) to us while in Denver to the countless friends that have watched our children and made my husband meals, to those friends knowing this adventure would be difficult financially thus sending us off with money, we have been helped beyond belief.

Be Educated.

In the beginning we were, then we stepped away. This never goes away and this is one time ignorance is not bliss. It would have served us well to have kept reading and learning.

Sharpen Your tools.

For us when things went smoothly we closed up our tool box. Looking back we should have used the calm peaceful spells to make sure our (and especially our son’s) coping skills, management skills and tools for living were being honed, practiced and perfected.

Stay Connected.

There is power in numbers. Remember there are other families  dealing with similar issues, really it is never necessary to feel like you are crazy and or alone! My family is living proof.

Be thankful.

Oh believe me this is hard some days, especially now that my life has come to a screeching halt. Everyday though we are reminded through our friends’ and family’s  love and care of God’s unending provision for our lives. How thankful we are for their love and support.

A

We are thankful for the countless doctors and clinicians who have taken the time to learn the special nuances of this disorder and make it their life’s work to help these children.

A

We are thankful for those teachers that don’t give up, who often are at our house going the extra mile to help our son succeed.

A

We are thankful most of all for this amazing bright young man whom we have the honor to call our son.  Daily his obstacles are great yet he keeps putting himself out there. We all could learn from his determination!

A

A

So this is why I haven’t been regularly posting and it might take awhile to get back in the swing of things when I return home, but please don’t be a stranger here , hopefully you can always find something fun in the categories. This blog brings me so much joy! Thank you for stopping by— I appreciate your presence more than you will ever know!

A

The photos were taken by my husband on a bike ride through the mountains with a friend and our boys last week.

T


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Comments

  1. Tuesday, July 13th, 2010
    I follow you on Twitter. I love the crafts you feature on this site. I had no idea you have a child on the spectrum. My son is 14 and has Asperger's. I'm happy to say that he is about to play high school football. That said, I understand your worry. I still see things in my son that will need complete understanding. The type of understanding that most people will not have the patience for. Still, I try to explain to people around him and help give him the words to explain his disability. Easier said than done right?!

    I found this: http://www.aspergerinfo.com/ascard.htm

    I made a copy and took it to Office Depot for them to laminate it. Them cut out a bunch of them. My son carries it with him just in case he gets into a sticky situation. It's so good for a teenager w/Aspergers to carry. Hugs to you and your son! BTW my Twitter name is VickysIckies.
  2. Sunday, March 28th, 2010
    My nephew was diagnosed with Aspergers syndrome. He passed away in 2002. He was only here on hearth for 4 short years but left a huge impact on my life. Every year me and my children do the walk for autism, with Autism speaks.
    Praying for you and your family (I know I am alittle late on the comment, but Im just catching up with my favorite blogs, your being one of them)
  3. Sandy King
    Saturday, December 26th, 2009
    MY THOUGHTS AND PRAYERS ARE WITH YOU AND YOUR FAMILY!

    SANDY
  4. Lauran
    Monday, November 16th, 2009
    My heart goes out to your family. My daughter is 12 with Aspergers and we have good days and bad we have started back to therapy last week I really hope this Dr. can help her.
    She is having melt downs at school and some of the teachers are wonderful with her and I appreciate them so much. Unfortunately there are a few that just don't understand the simplest things can throw her whole day off and just don't want to deal with her problem.
  5. Sunday, October 25th, 2009
    Nothing is more valuable to a teacher than appreciation for the work he/she does. My wife is a special ED, teacher. Thanks, Cindy, for sharing your joys and pains.

    regards,

    Rob
    Teacher Appreciation Ideas
  6. Ann
    Friday, August 28th, 2009
    My 8 year old daughter is high functioning autism and it is indeed a bumpy road. Some days more so than others. We've done OT and that helped. We have an IEP at our wonderful public school and that has been extremely wonderful in her adapting to that experience. She's even in the gifted/talented program. However, the outbursts, the angry words, etc. have eroded my sympathy and that is the very difficult part of parenting a special child. I applaud you for seeking additional help. I learned from some time talking to a therapist that the things that I feel are necessary and normal for a healthy parent/child relationship are just no so for her. She's wired differently and that is our reality. I would say it all works out and to some degree it does. But it has taught me that today is now and let's work on making today as good as possible. Tomorrow is the unknown and not to be worried over just yet.
  7. Ginny
    Tuesday, August 25th, 2009
    My dear sweet friend...I have a grandson with the same syndrome. We hear in California that it 1 out of every 30 kids have a form of autism. It have such a wide spectrum as you know. My heart and prayers are with you right now. I am sending you a huge HUG!!! to you and your family.
  8. MamaMoon
    Wednesday, July 15th, 2009
    Thank you for sharing such a personal story. My beautiful, perfect, 5 year old son has Asperger's and has made great strides since starting a Developmental Preschool in January. He starts kindergarten in a self-contained classroom this year but they have high hopes he will be mainstreamed by Christmas.

    While difficult, I think sharing your story, your experience, as well as your sons, is very helpful to many families experiencing similar things.

    Thank you again and I hope you are comfortable enough to continue sharing your journey for those of us still trekking along. :-)
  9. Wednesday, July 8th, 2009
    Wow, Cindy. Thanks for being honest and real with your readers. I have a friend who has an 18 year old son with Aspbergers, and it''s been a hellish ride for her. She is such a sweet lady. She loves her son dearly, and often things seem to be fine. But the struggles are so intense when they come. And her husband is enlisted in the military and is serving in Kuwait at the moment. My friend lives on the other side ot the country now, and I cannot go over to put my arms around her anymore. I want to give her your link so she'll feel less alone.
  10. Saturday, June 27th, 2009
    Good for you! It is sometimes very difficult to be a mom and know something isn't quite "mainstream" when you look at that child and see nothing but love and perfection. My son also falls on the autistic spectrum, and it is a daily journey all in itself. We are very lucky, his symptoms are very mild comparatively. I wish you the best and give your son a hug for me. One for you too~mom to mom.
  11. Saturday, June 20th, 2009
    Thank you for sharing this piece - it comes at a very poignant time for me. My 7 year old had been diagnosed in another state as having Aspergers, but since moving, her new school told us that the diagnosis no longer fit for her.... but I received her school report for her first semester at the new school and I was SHOCKED. The teacher mentions that she cries 'all the time for no good reason' and needs to 'manage her hurts and she will increase her circle of friends' - I sat down and cried. I feel so neglegent for going along with the school, ignoring my instincts & so much of our hard work has gone by the wayside - I knew she was being more difficult at home again, but she never told me about school. So thankyou thankyou for your post - it's given me the push to be even more determined for her. Bless you & your family. You are such a great Mum.
  12. Friday, June 19th, 2009
    {{{HUGS}}}

    Our 5 year old son is Autistic. He was diagnosed at 25 months old. I truly sympathize with you and your family. I also am afraid our days, like yours have been lately, will eventually face us.

    As well as our family blog, as listed above, I have an autism blog I recently started. www.hugsbythepound.com

    Take Care.
  13. Lisa
    Wednesday, June 17th, 2009
    Those lessons are every day life lessons. Thank you for reminding, educating and sharing something so very personal to you and your family.
  14. Monday, June 15th, 2009
    Thank you so much for your honesty in this post. My husband and I are also affected with ASD- both our daughter and son are on the spectrum. It is a difficult road to navigate- luckily we have a wonderful support system in family and friends. I will keep checking your blog for updates- and you and your family are in my thoughts and prayers.
  15. Rochelle
    Friday, June 12th, 2009
    My friend Jessica sent me the link to your blog. Yours is one of her favorites.
    Thank you for finding and sharing the lessons in your experience. My 12 year old was diagnosed with Asperger's in May and we spent a week at Children's as well. The few weeks leading up to that point were some of the most difficult of my life. His struggle was frightening.
    This has been heartbreaking and can drop me to my knees in tears. My beautiful boy has so much - he is funny & bright & so sweet. But he lives so much inside his head that understanding him & his needs takes a sensitivity that doesn't come naturally to me. I have let go of all expectations of him, which isn't the best I'm sure, but he has had a lot less stress.
    We are now in the midst of getting his support team in place. We've found a "friendship group" and are looking for an occupational therapist, speech therapist and individual therapist who specializes in Asperger's/autism spectrum. I try to be hopeful, but mostly I am scared.
    I truly appreciate your words and I'm sure I will refer to them often.
    Thank you so much.
  16. Elizabeth
    Thursday, June 11th, 2009
    Just popped in for the first time in a while. I am so thankful that you are talking about this. I will be forwarding this on to my sister who's son is 4 and was diagnosed high functioning a year ago. Thank you!
  17. Wednesday, June 10th, 2009
    I have loved your blog for a long time and have made your cute little tutorials with my three daughters on more than one occasion. My youngest is also on the Autism spectrum and was diagnosed with ADHD/ODD in October of 2007. She started a day program at a great children's hospital in our area in November of the same year. She was only 4 years old. I felt every emotion imaginable and worry each and every day about what her future holds. What kind of child she will be when she is 16....but she just graduated Kindergarten and is looking forward to a fun filled summer and I could not be more proud of her. Thank you for the tips. I find that education is the most important and sharing with others can be very enlightening for them as well as healing for you. I wish you all the best.

    Mandy
  18. Wednesday, June 10th, 2009
    I WISH you the best!!! I wanted you to know that I love your site. I have made a few things that you have posted and LOVE them. Thanks for sharing your talents.
  19. Tuesday, June 9th, 2009
    There is power in honesty. Thanks for sharing. My good thoughts are with your family.
  20. Tuesday, June 9th, 2009
    Thanks for having the courage to share. You and your family are in my prayers.
  21. Monday, June 8th, 2009
    My great-nephew also has this. It is a difficult road to walk. He is about the same age as your son. This boy can't read or write but is great with the "dragon program" on his laptop. just a little f.y.i. I have a friend that is a special ed teacher and I asked her what will this guy do for a living? and she said that they make great "lab" rats and could find a cure for some disease maybe.....and someone else will take the credit for it...but it was encouraging that he could work with no reading and writing skills.
    It sounds like you have everything covered and we are all here for you if you don't.
  22. Sandra
    Monday, June 8th, 2009
    Hi, I have been following your blog for a while now getting craft inspiration here and there. I read the post a couple of days ago and you have been on my mind ever since. You blog is full of craft goodness and even this post. Your heart must be overflowing. I pray that God continues to bless you and your family. You are not only helping your son but I'm sure this post is helping others with special needs children. God Bless
  23. Amy J
    Monday, June 8th, 2009
    I will be praying for your whole family. I have a cousin with Asperger's who just finished his first year of college. I have seen how bumpy the road is, but am glad that you are seeking the help that you need, not just for your son but for your whole family!
  24. Emily
    Monday, June 8th, 2009
    I live in Denver and have spent considerable time at Children's for my job (I'm a pediatric OT). I just popped on to your blog today and read about your struggles. If you are still in town, I'd love to cook a meal for your family. Our prayers are with you...
  25. Sarah
    Monday, June 8th, 2009
    I hope God holds you gently in his arms through this time.
  26. Sunday, June 7th, 2009
    Thanks for sharing your delicate thoughts about your family. I'll keep you in my thoughts and prayers.
  27. Dorien
    Sunday, June 7th, 2009
    Hi Cindy,

    A few years back, it didn't go well with my youngest son. His behaviour at school was awfull, and at home I found his brother in a closet because he was so afraid of him. We always thougt we could manage our children alone. We couldn't, and by the time we found out it was too late. Our son had to live in a institution for almost half a year, and a lot of therapy followed ( for him and for us as a family). He's back home now, no more therapy or special school. We have to do it ourselves again. But with everything we learned, I'm sure we can.
    I wish you and your family all the best and I really hope that this period will make you stronger and happier.
    Your blog has been inspiring me for a long time, thank you for that!
    Dorien
  28. Saturday, June 6th, 2009
    Sending thoughts and prayers your way. I am a school nurse in a k through 8 school and there are several kids with Asperger's Syndrom. Most of them in middle school. Most of them are doing great and really if you didn't read their history you wouldn't even know. I pray for your son and your family as you deal with this. I know puberty can play a huge role and maybe things will be easier for your son after that. Thank you for sharing and blessings to you and your family.
  29. Elaine
    Saturday, June 6th, 2009
    I am from Brazil and I love your blog, your ideas and your way to express yourself. I felt like someone knew exactly my feelings. Until last year, I have suspected my 6 year son had AS. It turned out he is extremely shy only, it a challenge but not compared to yours. The most important thing for me, was the support I have received from people around me when I most needed it.
    Please, be sure my best thoughts are with you, even being so far in location. I wish you and your family the best.

    PS> It's been a long time since I last wrote in English, so I am a little bit rusty with it. Sorry if there are mistakes on the post above...
  30. cecelia
    Saturday, June 6th, 2009
    My son is 8 and we are in the beginning stages of testing Reese for Aspergers .It is so hard to watch people shun my sweet little boy.They just don't understand his situation.I know that we have a long road ahead of us.One thing is Reese has just started having siezures,i understand that is not very comon with children with Aspergers,is that anything you have experienced.My prayers are with you and your family.
  31. Saturday, June 6th, 2009
    my thoughts and prayers are with you. Thanks for sharing your thoughts with us.
  32. Friday, June 5th, 2009
    Your blog has often been the bright spot in my overwhelmingly stressful life as an older single mother with many personal challenges...I want to say I admire your courage to pause and share what you are experiencing. My gosh, blog-land has often looked like "perfect land" to me...and sometimes I can't help but look at my own life and ask, "What's wrong with me?" But you know what? We are all human. Our blogs are just that...our happy places. We all have trials and tribulations, happy times and sad times...We are all, indeed, human. Thank you for sharing your human-ness with us. It is soooo needed. That's how we learn...through each other. My thoughts and prayers are with you and your family.
    Many Blessings your way,
    Cynthia
  33. Friday, June 5th, 2009
    thank you for your honesty, as well as those helpful points to survival...
    we have a 3 year old, who is struggling with "something" they say it is not autism, but as he ages... it begins to look similar to....
    His brain connectors just stop. he draws blank, and just becomes nothing. This happens for 10 days at a time, and then we will have a month of progress.
    But, this last regression, I too, saw the needs to "sharpen my tools", to never give up, to be thankful, and to cheer my little boy on.
    as a mother, you and I, are our sons biggest fan- and with you being in Colorado, you are his biggest cheerleader, his beacon of hope, and his shoulder to find rest, peace, love and direction..
    take care, and thank you for sharing, your heart is heard.
  34. Friday, June 5th, 2009
    Keeping you and your family in my thoughts and prayers. I love it when bloggers can be free and honest with their audience.

    You are awarded the "One Lovely Blog Award" today. You can check my blog for details.

    Hugs,
  35. Friday, June 5th, 2009
    Thank you for this honest, sincere post. It touched my heart and your family will be in my prayers. Sometimes we sidestep the long term, only focusing on the short term but you are all working together and your son is blessed to have a family like yours!
    Best wishes! ♥ Jen
  36. Friday, June 5th, 2009
    Thank you so much for sharing this story. Looking at the number of comments to this post, it is obvious that you have a large amount of followers who also care a great deal about you and your family. We are all there with you.
  37. Friday, June 5th, 2009
    Although my journey has just begun as my son in only 4, I do know what it can do to a family. I will keep you and your family in my thoughts and prayers and wish you all the best!
  38. Thursday, June 4th, 2009
    Sounds like it's been a rough time. Glad you're learning from it, and thanks for sharing what you've learned. Prayers said for your son and your family...

    And those are lovely photos.
  39. Thursday, June 4th, 2009
    Keeping you in my thoughts...my oldest has also been diagnosed and sometimes I get that drowning feeling...and am also thankful for my friends and his friends that have accepted him unconditionally and have come to understand who he really is!
  40. Karin
    Thursday, June 4th, 2009
    Years ago I was able to see you handling this difficult situation first-hand (we lived in Germany together) and there is no one that has amazed me more by their ability to handle stress and crisis with humor and perspective. Even now, 7 years later, I think of you when the going gets tough and I try to find the humor in it all- it's there, you just have to dig sometimes! Thanks for the life experience! I will be praying for you.
  41. Thursday, June 4th, 2009
    Cindy,
    I'm so sorry you are going through this. My son, age 14, is also Aspergers. It took a long time to get the diagnosis, though, because he is internationally adopted and they wanted to rule out those delays. We are in a specialized school now that is wonderful for him. Our biggest issues are dealing with others who see him as "different". Amazingly, it's adults that can be cruel like children!!
    I will keep you and your family in my prayers as you go through this. I am praying, too, that your son receives the help and treatment he needs. I was once told by a family member that God has made us all perfect and has a place for each of us in this world. Sometimes when I feel helpless with my son, I rely a lot on that. I hope it helps you too!

    Hugs,
    Caroline
  42. Thursday, June 4th, 2009
    My thoughts are with you! I love your blog because you are honest. Too many out there acting like the world is peachy keen when we all know it isn't. I'm praying for your family tonight!
  43. Stacey
    Thursday, June 4th, 2009
    As a mom of a two year old still trying to determine a proper diagnosis I can completely feel for you. I am at the very beginning of this path and as someone further down the road, you give me great inspiration. I pray for you and your family. If nothing else I have learned that it's family that you need to hold on tight and cling to in times of need. Good luck.
  44. Alice
    Thursday, June 4th, 2009
    Today was my first visit to your website. Very touching. I am new to the blog world and I am so grateful for this avenue of expression, that we as mothers are able to utilize and bond with someone clear across the country...

    The presence of you being with your son is so powerful. Not only as a mother, but as an other "being" experiencing his reality with him.

    Sending positive and joyful thoughts to you and your family.

    ♥ Alice
  45. Thursday, June 4th, 2009
    I have been reading your blog for some time and have loved it. I am so glad that you chose to share your challenges in dealing with Autism/Asperger's. I am sure you have no idea how far-reaching the effects are in sharing this as so many people are sharing the same struggles.

    PS Nice pictures!
  46. Melissa
    Thursday, June 4th, 2009
    hang in there. It seems like you have the core basics figured out. Friends, knowledge and acknowledging the blessings. I know when I found out about my two children having it - it was hard. I also know sometimes when they would act out it was difficult for others because they look "normal". I think it takes courage and lots of strength for parents to deal with the extras God gives us. We are the best advocates for our children. Sending lots of love and prayers your way. *Remember the little things*
  47. Thursday, June 4th, 2009
    I have been in your shoes many times - my granddaughter was born with a disease - 1st we were shunned even by my own sister - I have not seen her since October 1990 & we were very close. But the bottom line is that you are doing every thing that you possibly do - that is the important thing. My husband passed away 15 months after Miranda did at 12 years old - so the best that I can tell you is that when every thing is done - which, by no means that your situation is this bad - but in your heart if you have done everything possible - it will be ok. My other daughter had a set of twins that are now 8 - and they are pretty sure that one of them has what your son has. We will take it 1 day at a time.

    Blessings

    Bev

    P.S. - I truly hope that I have given you some inspiration - I know I can be a little confusing some times - but that is what passion does to you - you have your main focus.
  48. Sara L
    Thursday, June 4th, 2009
    Sending lots of hugs and prayers to you and your family. Thanks for sharing and just know that you are never alone!
  49. Wednesday, June 3rd, 2009
    You are an inspiration to all who read your blog. As I was reading the comments of other women I couldnt think of anything more to say other than to echo each of their comments and to let you know that one more family, mine, will be praying for you and your family. May the Lord Bless each of you. x
  50. Wednesday, June 3rd, 2009
    I have a 5 year old son who also has asperbergers syndrome. We are trying to educate ourselves and have our son in therapy. He has grown leaps & bounds in the last year. Thankyou for your tips and advice. I will remember them. I have been following your blog only a few months but really enjoy it. May our Father in Heaven bless and keep you and your family!
  51. Erica
    Wednesday, June 3rd, 2009
    I live in Parker and I would love to bring you and your family a meal or something! I love your site and hope you can find some answers for helping your son!
  52. Sherry
    Wednesday, June 3rd, 2009
    God bless you and your family. Thank you for sharing such fabulous advice. It takes an amazing amount of strength and courage to deal with these kinds of crises day-in and day-out. May you continue to find strength in your blog and in your friends and family.
    Love and prayers to you and yours.
  53. Lori Faeber
    Wednesday, June 3rd, 2009
    I am definately sending good thoughts your way. I can't imagine what you are going through, but with all the support you are getting you will get through this. I enjoy reading your blog, the good and the bad. It is nice to share your experience with others so they know they aren't alone for sure. Take care and hope things go well for you, your son and your entire family!
  54. Wednesday, June 3rd, 2009
    You have an amazing blog...but obviously you're more amazing as a mother and that's what counts. Sending you lots of love and prayers to you, your son and your family. ♥
  55. Kate
    Wednesday, June 3rd, 2009
    My son has AS as well. It's a rough road to go down, but I am so happy that there are others out there dealing with the same problem! :) Good luck I know its a day to day thing!
  56. Sandra
    Wednesday, June 3rd, 2009
    I love your blog and have been following it for about a year. Please know that someone in California is praying for you and your beautiful family!
  57. Wednesday, June 3rd, 2009
    Our thoughts and prayers are with you, and thank you for using a very trying time in your life to help others. You truly are a woman of great strength and integrity to approach even your own trials as an opportunity to ease the burden of someone else's heart. Remarkable.
  58. Wednesday, June 3rd, 2009
    Sending positive thoughts to you and your family. I'm so glad you wrote this post. Big hugs.
  59. Krista
    Wednesday, June 3rd, 2009
    Peace and healing. I'm glad you posted. Most people have now been touched in some way by autism.
    My heartfelt prayers go out to you and the many beautiful people loving and weather (all that goes with) their special needs kids.
  60. Wednesday, June 3rd, 2009
    We will pray for your son. I know you must be having a difficult time balancing everything right now. Take care.

    ~Kim
  61. Susie
    Wednesday, June 3rd, 2009
    Parenting is the toughest job in the world. There are days where I wish there was a manual I could refer to when I am at a loss.

    My thoughts and prayers are with you and your family. I understand the struggles a family goes through with a child with special needs. I have a son with behavorial and social problems. Everyday is a new day, one in which we never know how the day is going to go. Sometimes we make it through with little disturbances and others, it's a battle all day long. It can be draining, lonely and frustrating.

    By all the comments, you have an amazing support group here in "blogland". I'm glad to hear you also have an amazing group of friends that supports you.

    Good luck and I hope the hospital can bring you the help you need. Take care!
  62. Wednesday, June 3rd, 2009
    You and your family will be in my prayers. Thank you for sharing this bit of your life with us.
  63. Wednesday, June 3rd, 2009
    Thank you for the authenticity! Praying for strength. I hope the treatments go well. Take care.
  64. Wednesday, June 3rd, 2009
    I'm glad you were able to reach out for a helping hand when you needed one and also glad that you've opened up to share your experience! Sending you many positive thoughts and I hope you and your son will be able to go home and resume a peaceful routine soon.
  65. Wednesday, June 3rd, 2009
    My 16 yr. old son has Aspergers & it seems as though we were all managing up until this year as well. The bottom just seemed to fall out from underneath my son's world all at once....though looking back, I suppose I can honestly say that it has been a long time coming.

    I have put into place extra supports for my son as well. Like you, my son has attended a day program & additional therapy for several months. I do feel like he is making progress, but I remain cautiously optimistic. I don't want to be blindsided and caught off guard if those subtle signs start rearing their gnarly head again.

    I am proud of the progress & hard work my son has put forth. He is a wonderful soul & he has worked tirelessly to forge ahead with a warrior attitude (though his 16 yr old attitude shines through too:-).....) Hang in there - I am glad I found your blog....I'll be checking in from time to time!

    BTW: I am also diagnosed with Aspergers....blessings to you & your family.
  66. Wednesday, June 3rd, 2009
    My thoughts and prayers are with you and your family. Who knew being a parent would be such a rewarding, joy filled, terror filled, heart breaking ordeal?!

    May God give you strength for today and hope for tomorrow!
  67. Wednesday, June 3rd, 2009
    Thanks so much for sharing this with us. My prayers are with you and your family. God bless!
  68. Wednesday, June 3rd, 2009
    I truely respect your honosty. No family is perfect, that is what makes all of us so unique. For years we always wondered what was going on with my nephew. We always thought that he was "different", but we loved him and embraced his uniqueness. He was finally dx with asp. last year and is therapy. My sister had to take him out of school and home school because kids are so cruel. He had problems with being bullied. For him, home is his safe haven. Know that you are not alone. God Bless.
  69. Deb
    Wednesday, June 3rd, 2009
    Thanks for sharing...I'm glad you did because, as you said, it helps to do so. I don't have children with autism but we know quite a few families with children Aspergers or other forms of autism and they all testify to the need for help from professionals and good family and friends. Hope all goes well with your son's treatment.
  70. Tuesday, June 2nd, 2009
    i read this post this morning and have been thinking about it all day! we too have a son with asperger's and i have never wrote anything about my son. it's funny because i used some of the teacher appreciation ideas for his amazing teacher he has had this year! i will always remember what you wrote about sharpening your tools and we will continue to educate ourselves. thanks for your great blog post!
  71. Tuesday, June 2nd, 2009
    Just wanted to say I'm thinking of you and wishing you the strength and grace to manage these challenges. I've heard wonderful things about the program you are visiting!
  72. Tuesday, June 2nd, 2009
    Thanks for sharing-you're a great mother. You'll be in my thoughts.
  73. maribeth
    Tuesday, June 2nd, 2009
    thank you so much for sharing your story! i am a preschool teacher and in the last four years have had several children in my classroom who fell on the autistic spectrum. some entered my classroom with a diagnosis, a few received a diagnosis during the year, and some did not want to face the issues their child was having. as you know, early intervention is crucial for children who fall on the spectrum. i believe the more people are aware of autism and the children and families who face its challenges, the more people will not fear the unknown. i just want to help these families understand their children and their needs more. i think stories like yours can help do that!
  74. Tuesday, June 2nd, 2009
    So sorry to hear of your family's struggles. I am so impressed that you put your family's hard times out here for people to know about and to help others. I applaud you. I will be sending prayers your way.

    ((hugs))
    Jen
  75. Adrian
    Tuesday, June 2nd, 2009
    Sorry to hear your family is going through such a rough time…my thoughts will be with you. I know it is hard to open up about personal matters, so thanks for sharing!
  76. Tuesday, June 2nd, 2009
    I hope all the best for you and your family. I have had loads of fun sewing due to your blog. I hope you find that same joy and happiness sometime very soon.
  77. Tuesday, June 2nd, 2009
    Sorry to hear your family is going through such a rough time...my thoughts will be with you.
  78. Tuesday, June 2nd, 2009
    Cindy, I am so sorry your family is struggling right now. I am in therapy to deal with problems stemming from my son's serious heart defect and your suggestions will definitely be helpful. More importantly, I hope the warm thoughts and prayers that many in the blogosphere are sending your way can be felt.

    Thank you for sharing and don't be hesitant to do so again if you need to on your blog. Journal writing can help you with coping during the trying times.
  79. Tuesday, June 2nd, 2009
    Cindy, I have wanted to post all day but I was at work and wanted to take the time to write. I work with children on the Autism Spectrum as a speech therapist and would like to be in the classroom someday soon (working on it as my Masters). It is challenging and difficult but I know the reason I do it everyday is for that one single moment (which often times can be almost a year in the making) when a child "gets" it. That "ah-ha" moment where they make the connection. All the hard work, months of trying, tantrums, difficult days all erase away. That is why I do it. Let me share a story with you, about a month ago I was out in the community with one of my classes and we were at a restaurant where I saw a former student of mine working as part of his job training/life skills class. I went over and said hello, he remembered me and I felt awesome that he progressed to being able to have a job.
    As I sat there in the restaurant I texted all my friends who worked with him and told them the good news, they all said to say hello and were so happy for him. That was an ah-ha moment.
    I am thinking about you and your family and know that you can count me on your side if you ever need to chat, talk or just vent (about anything). He is very lucky to have a mom like you and a family that is caring and on his side.
    Bless you, Zizette
  80. Katie
    Tuesday, June 2nd, 2009
    Prayers for you and your family. Take as long a break as you need...I'm sure we will all be here when you get back. I know I will be!
  81. Bec
    Tuesday, June 2nd, 2009
    Thank you for sharing. It's not easy opening up our struggles to others. I am glad you have the help of friends to see you through the tough times. Chin up.
  82. Tuesday, June 2nd, 2009
    I visit your blog often, not often commenting however. I appreciate your honesty and know that there is some great comfort in "blog land". It is wierd. I have gone through some serious trials and bloggy friends (new and old) come out of the woodworks to offer support. I hope that you find that sort of love too. Your family will be in my thoughts and prayers. I live in Denver and have some friends who are doctors at the Children's Hospital - I know you are in great hands!
  83. Heather Siani
    Tuesday, June 2nd, 2009
    Thank you so much for sharing your life with us. I will pray for strength for you.
  84. Tuesday, June 2nd, 2009
    Thanks for sharing your situation with all of us. You are not alone. Though the struggles may be different, many of us deal with issues with our children that are tough and sometimes heartbreaking. My struggle is with my 6 yr old's life threatening food allergies. I wrote a week of blog posts about food allergy, with one coming to the heart of the struggle.

    http://4keith.blogspot.com/2009/05/food-allergy-awareness-week-friday.html

    You will be in my thoughts. Your child is lucky to have a wonderful mom and a great family backing him up.
  85. Kerry
    Tuesday, June 2nd, 2009
    THANK YOU...THANK YOU...THANK YOU for putting it all in perspective, at a time when i desperately need it:-)
    My 8 yr old was diagnosed Bipolar 2 years ago and it's a difficult and rocky road........sometimes seeming insurmountable.
    My prayers are with you on this journey and know that your posting gave someone hope today:-)
  86. Tuesday, June 2nd, 2009
    I can understand your struggle and appreciate your honesty. May God give your family strength and peace.
  87. Tuesday, June 2nd, 2009
    Thanks for sharing your personal life with us. I know how hard that must be. You are in my thoughts as you struggle. Just know that we are praying for you and hopefully things will get easier.
  88. Panya
    Tuesday, June 2nd, 2009
    I have Asperger's myself, and it makes me feel good to read about a parent being so supportive. ((hugs))
  89. Tuesday, June 2nd, 2009
    My prayers are with you! You are definitely not alone my son has autism (Asperger's). It can be a day to day struggle. It's a learning process for us as parents as well as our children. The entire family is affected by Autism not just the child or adult that has been diagnosed. I hope and pray that things are going well that and that you see positve outcome from all of this. Thanks so much for letting us know so that we can be there for you!
  90. Tuesday, June 2nd, 2009
    Thank you for being real. I often find myself wanting to blog more but I don't. I get concerned that what I have to say isn't pleasant or witty. (So many blogs are both!) For me real life is very real and that means I get the ups with the downs. I know we all have real lives like that but many only share the beautiful and lovely side of things. I'm often left wondering (after reading those blogs) if I'm the only one with struggles.

    I was in Denver's Children Hospital 17 years ago with my son. I remember my stay there well. I lived in Denver, Thornton and Fort Collins for years before moving to Illinois. Sorry I can't be closer to lend you a shoulder. I will say a prayer for your family.

    I too wish I had answers. I don't. In cases of my lack of understanding, I hold firmly to my faith. I hope you have that to give you strength. Sending you loving and friendly thoughts from afar. : )
  91. goddessence
    Tuesday, June 2nd, 2009
    what can I say, but...you are inspiring...thankyou
  92. Tuesday, June 2nd, 2009
    (((hugs))) Cindy. Take care out there... I'll be thinking of you. xo
  93. Tuesday, June 2nd, 2009
    Thank you for your honesty in sharing your family's situation and experiences through this post. Life is meant to be shared - the good times and the times with which we struggle most. Praying for you and yours, for strength, stamina and a sense of peace that can only come from Him.
  94. Tuesday, June 2nd, 2009
    My almost 15yr old son has Asperger's with ADHD. I'm really glad you posted this. We had an absolute HORRIFYING day Sunday. Around 4pm, he announced that he didn't take his Adderall that morning. Well now he knows WHY he takes it. My body was actually sore from being tense all day long.

    Thank you for reminding me that I am not alone. AND that its OK to admit when we need help.
  95. kathryn harrison
    Tuesday, June 2nd, 2009
    Thank you so much for sharing. I have a 6 year old daughter who is autistic. Ignorance is indeed not bliss and the more knowledge you are equipped with, the easier it gets. I hope your son gets all the help he needs and deserves. Best wishes and good luck.
  96. Tuesday, June 2nd, 2009
    I'm so sorry to hear that you're family has been going through rough times. My thoughts and prayers are with you! *hugs*
  97. Liz Roud
    Tuesday, June 2nd, 2009
    Hey Cindy,

    I do not know if you remember Willem from back in the day at ISD, he too has been diagnosed with Aspergers and since it is very recent I am still in the denial stage. He is now 14 and I have no idea where to go from here.
    I will keep you in my thoughts and prayers and if you learn anything significant, I would greatly appreciate you passing the info along.
    I love your site and todays post really hit home.

    Thanks and I hope all is well!

    Liz Roud
  98. Martha B
    Tuesday, June 2nd, 2009
    I am also a mother of a child on the autism spectrum. Thank you for sharing with us. Somedays I am isolated to the home with my son. I have found daily reading of quilt and craft blogs gives me a sense of normalcy. Once your life settles down a bit, please continue to blog. From reading the post before me, sounds like there are other families touched by autism who enjoy your blog.
  99. crochetsew
    Tuesday, June 2nd, 2009
    For some time I worked with kids with diaabilities. It is a hard thing to go through for some more so than others.My greatgrandson has aspergers and is progressing nicely but will always have some quirks that we understand but the outsiders do not. He is sweet and a very even disposition. He just has to fight fears most of the time.Things the avergage person would not give a second thought.I pray that you all can get the help that will guide you to a workable and livable solution. God Bless. Pat
  100. Tuesday, June 2nd, 2009
    Cindy!!!
    Thanks so much for this post. My oldest is on the spectrum (more moderate-severe)- I love your honesty and advice. On National Autism Day I wrote an autism post if you want to check it out:
    http://adventureswiththeprovosts.blogspot.com/2009/04/national-day.html
    And I totally agree- it can be very lonely at times. I'm here for you!! From one autism mom to another. Hang in there.
  101. Barbara C
    Tuesday, June 2nd, 2009
    You are never alone in this journey. I work at a facility in Mississipppi for people with developmental and physical disabilities. In addition, there are several staff here who have children with Autism. It is indeed a journey. Our best resources are parents. If you would like, there is a parent here you would love to get to know. She works with other parents also. That is her soul mission. She is Susan McPhail. Her daughter is Ashley. We have all grown up with Ashley. her mom is very candid and down to earth. She is a strong advocate, but realistic. I think you would enjoy taking with her. her email address is: [email protected] Ashley has a twin brother who just graduated at Ole Ms. They are terrific resources and just good folk!!! You makeing the right steps in your journey. Be real, is what we tell families.
  102. mary
    Tuesday, June 2nd, 2009
    You are a good mother.
  103. Marilee
    Tuesday, June 2nd, 2009
    Our thoughts are with you. Your son is very lucky to have such a caring and supportive family.
  104. Tuesday, June 2nd, 2009
    Oh, honey. Take care, and let me know if I can do anything to help.

    (((((hugs)))))
  105. Tuesday, June 2nd, 2009
    So sorry to hear that you have been struggling. Sending warm vibes you way and wishing you much love and peace.
  106. Tuesday, June 2nd, 2009
    My sister Rebecca already left a comment, but I wanted to add a thank you. Thanks so much for sharing this with us. I think that by sharing our stories, we are educating others. I think it opens us up to helping other people in similar shoes know how others deal with it. I sometimes feel so alone in my world. I love to read about other families living through tough situations. Together we become stronger.

    Thanks so much for sharing!!
    Anjeanette of the Roots and Wings Co girls;)
  107. Tuesday, June 2nd, 2009
    wow!!! although my b is adhd, i can totally see those same things here...sharpen your tools and keep loved ones close by! i am so glad you all are moving through this life together...and i know you will learn bc of your openness!!! prayers.
  108. Tuesday, June 2nd, 2009
    My 9 year old son was recently diagnosed with Aspergers. Originally he was diagnosed with ADHD. It is very difficult many days to see the struggles he goes through. It is hard on the entire family so I am so glad you were able to have the family counseling as part of his treatment. I fear at some point we may be in the same situation as my son is getting more violent the onlder he gets. I hope you are able to find the answers and comfort needed. Good luck!
  109. Tuesday, June 2nd, 2009
    Thank you so much for sharing your heart. I am the mother of a child with Autism as well. I will certainly remember you and your family in my prayers.
  110. Anorthite
    Tuesday, June 2nd, 2009
    I am so sorry - my brother has Aspergers, and I understand.
  111. Tuesday, June 2nd, 2009
    I wish the best for you and your family. It sounds like you have a wonderful support system. Although it is hard being the glue that keeps the family together...when everyone looks to you for strength and guidance. Keep smiling and never loose faith. We'll all be here waiting for you when you get back to blogging!
  112. Tuesday, June 2nd, 2009
    My son is 7 yrs 11 months. One thing I've learned is that it's not a "short race" so to speak raising/helping my autistic son, but more like a long haul. While my son has made wonderful progress, his disability is life long.

    I'm still trying to learn to pace myself and not get burned out. That's the tricky part for me...balance.

    Just to show you how misperceptions and askewed thinking can be even among close family members, my husband still thought our son could be "cured" with behavior therapy. Lol! Funny, but kind of sad.

    The younger years are only the beginning. I'm trying not to think too far ahead, but I know that the teen years will be upon us before we know it!
  113. Tuesday, June 2nd, 2009
    Hi there,

    Fitst of I want to tell you how corageous I think you are by telling the world about your worries and fears, your believes and your problems. Not everybody would decide to talk so open about having a Son with Asperger. As it happends to be, my sister has a son with asperger too, he will turn 12 in August this year. He goes to a special school with lots and lots of people surounding him for help and support. I know your son has the best saftynet he could hope for, he has you and his dad!
    Keep believing in him, he could turn out to be the best thing ever happend to you in your life!
    hugs from the Netherlands
    Winda aka DutchQ from number 29 aka (*ü*)
  114. Tuesday, June 2nd, 2009
    My thoughts are with you and your son that he gets the support and the coping skills he needs to move into adult life. Autism is so difficult for everyone involved, but thankfully (as you pointed out) they is a lot of support and information to be found.
  115. Tuesday, June 2nd, 2009
    Thank you for sharing--your family is in my prayers.
  116. Tuesday, June 2nd, 2009
    As the Mother of a 12 Year Old Aspergers Daughter and the Sister of a 47 Year Old Aspergers Brother...I say Amen to all you shared.
    Contact me ANY time to talk, share, laugh, cry.
  117. Tuesday, June 2nd, 2009
    Autism runs in our family as well. I've seen how it can affect a family. I applaud you for putting your family first. I know how hard it is to open your personal life up to the blog world! My blog is called RootsAndWingsCo. It is with my sister, Anjeanette, and sister-in-law, Katrina. Katrina did a post on just this topic: http://rootsandwingsco.blogspot.com/2009/03/autism-awareness-pin.html
    And Anjeanette has a post on how a different diagnosis has affected her family's life:
    http://rootsandwingsco.blogspot.com/2009/05/this-week-is-national-eosinophil.html
    So, we understand how a diagnosis affects your family. If you ever need to swap stories feel free to contact us.

    Rebecca
  118. Terri
    Tuesday, June 2nd, 2009
    Our thoughts and Prayers are with you. We, too have a son that has been diagnosed under the Autism Spectrum...He is Bi-Polar, has sensory issues, fine and gross motor inabilities, speech and language disabilities and learning disabilities. These all fall under the Autism Spectrum...God Bless you and your family as this is a very trying disorder..Not only for you, your family but your son too...And yes, I agree, these kids have the perserverance beyond belief...They just keep on keeping on, plugging away at every day life and whatever comes there way...
    Again, God Bless You..
    Terri
  119. Tuesday, June 2nd, 2009
    I too will be keeping you and your family in my thoughts and prayers. I can only imagine how difficult this is for you. I hope all will be well.
  120. LeapLady
    Tuesday, June 2nd, 2009
    Thank you Ms. Lou! I clicked a link in your sharing portion and read about autism. You are a very special woman and I can totally believe that your son and family will come through this time stronger and ready for the next stages in all your lives. "Coming clean" on blue days, or during a challenge is hard, but also cleansing! Thank you for opening your heart and life to so many. You can count on my prayers too!
  121. Tuesday, June 2nd, 2009
    I've enjoyed your site for a long time. Thank you for opening your heart and sharing with us. I have a friend whose son has Asperger’s Syndrome. It's certainly difficult for all involved. I'm glad you're getting the help and support you need. May you find God's grace abundantly sufficient for every need.
  122. Aleta
    Tuesday, June 2nd, 2009
    I also have a son with Autism. We are amazed at all the wonderful things he has been able to accomplish, despite what some the doctors told us in the early days. Every once in a while we see him slip back into certain behaviors that worry us. Though it has been a struggle, I can honestly say that we have been blessed with this disease. It has been so hard, but through this we have seen amazing things happen. Not just with him, but with all those around him. I can't agree enough with the "staying connected" mentality. I do believe that being plugged in, not only saved my sanity, but enabled us to introduce the new face of Autism to so many of our friends, and gain new friends with similar struggles. So, as a small encouragement, you can rejoice that God has given you an extra special angel to take care of - and remember the ministry you have because of that gift! I will definitely remember you in my prayers!
  123. Tuesday, June 2nd, 2009
    I will be keeping your family in my prayers! Your post brings tears to my eyes becuase since having my son 7 years ago I always feel such a connections with other special need families! Such a great post, I think you will be helping a lot of other Mom's with it! Love your blog!
  124. Tuesday, June 2nd, 2009
    You will be in my thoughts and prayers! I really feel that what you are doing, the sharing of how you & your family are coping with the situation is so incedible! You don't knwo how or when you will really touch someone else who needs to hear what you are sharing from so deep withen you! You allowed yourself to be vulnerable, however in return you may help someone else in such tremendous ways- & never even know it. I can't express how wonderful the track of your journey will take you, just by becoming so open in your expression!
    God Bless you, I will pray for you & your family...
  125. mrs squeeky
    Tuesday, June 2nd, 2009
    Your life is echoing mine. My son is 13 and going to the consultant next week to be diagnosed. He has seveer Ad hd , when this was diagnosed I did not treat it as a DISABILITY infact it gave me the strenth and ABILITY to deal and cope with him better. Your posts give me such a boost over here un the UK, As i call it my sanity time breaks on the pc or my sewing machine. I'm rooting for you girl keep us up to date with news, in my thoughts and preyers
  126. Tuesday, June 2nd, 2009
    I'll keep you in my prayers.
  127. Barbara
    Tuesday, June 2nd, 2009
    I will keep you and your family in my prayers. I love your blog and craft ideas and thank you for you sharing your creativity and thoughts.
  128. Tuesday, June 2nd, 2009
    bless your heart and your sons too..
    i can only imagine.. having to feel like you have to put it in other peoples hands

    my lil man is almost 5 and has autism.. and well honestly its the most challenging and trying fight..

    if there is anything i can do to help let me know
    i am so proud of you for knowing when to hand the wheel over..
    i only hope if i am ever in your shoes that i would be as strong as you!!!

    take care.. and give that man a big squeeze for me!

    sam
  129. Tracy
    Tuesday, June 2nd, 2009
    Thank you for your honesty. Your post was wonderful and I am sure helpful to many. I wish the best to you and your family.
  130. Tuesday, June 2nd, 2009
    Hi! You don't know me...but I love your blog. I just wanted to let you know that I will be sending lots of love and prayers your way. Your advice is so right. Through sharing your story you will help others!!! My daughter has T1 diabetes so I understand the fear of being in the hospital and all that comes with it. Take care! Love, Meg
  131. Tuesday, June 2nd, 2009
    My prayers are with you and your family, especially your son! So sorry your family is having such a rough patch...I hope things smooth out from here on out!!!

    You are in my thoughts....
  132. Dana
    Tuesday, June 2nd, 2009
    No, we never are alone, are we? No matter how overwhelming it feels, there is peace and calm amidst the storm. My 13-year old son has Asperger's - I have been watching the way Asperger's changes as puberty takes full hold. My sons struggles are every bit as difficult as they were when he was three, but they look so much different now.

    I hope you continue to blog about this. I know very few parents of teen Aspergarians and find resources difficult to find as we move into this new stage.
  133. Tuesday, June 2nd, 2009
    It's very easy in this faceless world of blogging, to assume our favourite writers are moseying along just fine when we're not looking, but that isn't always the case and I'm so glad you've spoken with such authenticity now.

    Our eldest, Jay, is 10½ and autistic, and this week, we'll be telling him about his disability for the first time (some give their ASD kids the specifics sooner, but in our case, Jay has really only become appropriately mature in the last year or so). It's a very scary time for us - just last night I was in tears watching a British documentary on kids on the spectrum. I've got a pretty thick skin most of the time but it's the off-guard moments that shake your foundations the most.

    Know that even though the vast majority of Bloggityville remains faceless, there's a genuine, solid community out there so reach out and offload just as often as you need it :)

    Thinkin' of you...
  134. Tuesday, June 2nd, 2009
    My thoughts and prayers are with you and your family. You have been a wonderful source of inspiration to me and would like to thank you. If there is anything I can do- please let me know.
    I used to live in the Denver area. (The food there is great! I know some yummy inexpensive places if you are interested. Boy, I miss the mexican food there!)
    God Bless-
    Michelle
  135. Tuesday, June 2nd, 2009
    Thank you for taking a moment, during this difficult time, to share your story and your words of encouragement and advice to others -- for putting YOURSELF out there to help others. You are a very generous person all around. Our thoughts are with you and your family, and we're hoping that everything will improve for you all.
  136. Tineke
    Tuesday, June 2nd, 2009
    You and your family will be in my prayers tonight. Sometimes we all just need to vent and let our feelings out. Please take care and may God and his Angels watch over you!
  137. Tuesday, June 2nd, 2009
    Thank you for your thoughts. I don't know you, but enjoy your blog every moning about 8am. Thanks for sharing your creativity and life through your blog. WE LOVE IT! My thoughts are with you and your family and pray that you will return home soon!
  138. Nadia
    Tuesday, June 2nd, 2009
    You made me cry! Well said, our middle son who just turned 5 has Angelman's Syndrome, and I think this post just shook me out of my complacency! You captured the essence of a special needs family perfectly. Much love to you and your family!
  139. Melissac
    Tuesday, June 2nd, 2009
    I am keeping you and your family in my prayers!! Blessings and hugs!!
  140. Tuesday, June 2nd, 2009
    I love your honesty. You rock. Keep it up!
  141. J. Wong
    Tuesday, June 2nd, 2009
    Thanks for being vulnerable and real. Every time I've done that (and it's hard for me, too!) I feel blessed in return and am so glad I did. I'll pray for your family. Much strength and love to you!
  142. Judy Bradley
    Tuesday, June 2nd, 2009
    My prayers are with you. I have a friend whose two children both have Aspergers and it has been a challenge and I am sure will continue even though they are both adults now. I have also worked in personal for adults with Autism. It touches all our lives in some way or another.
  143. Carol
    Tuesday, June 2nd, 2009
    Thank you so much for sharing. I also have a 13 yr son with Autism. At times it's difficult but knowing my Heavenly Father loves me so much to entrust me with this spirit and I try to do the best I can. Thank you also for the reminder to keep learning and sharpening those tools. I sometimes forget I need to keep on top of it. My daughter and I love you site and love to make and share with others the things we learn. We'll keep your family in our prayers.
  144. Tuesday, June 2nd, 2009
    Oh I'm so sorry to hear you and your family are going through a tough time. I'm a Special Ed teacher and understand what you are going through. I've had several students with this type of autism over the years ~ it always varies in different degrees and difficulities.

    I wish you all the best and how wonderful for your son that he has such loving and supportive parents who are obviously doing all they can for him!

    Fondly ~
    Jo
  145. Fawn
    Tuesday, June 2nd, 2009
    Well said! Good luck on your journey :) It sounds like you're back on track and hopefully things will work out for your family and son.
  146. Patty
    Tuesday, June 2nd, 2009
    Thank you for being so open and honest about your son and your life! You are blessed with a beautiful son, even with his autism, and God will always be there for you, your son, and your family. Remember, God will take your troubles from you if you hand them to him!

    Please keep us updated on your son, as we consider you and yours a part of our family too!

    I will keep you in my prayers!
  147. Michelle
    Tuesday, June 2nd, 2009
    Thank you for sharing. You and your family are in my prayers. I hope hope things calm down soon and your family can come together once again!
    Michelle
  148. Tuesday, June 2nd, 2009
    I don't really know what to say. I am a mother & I can only try imagine the pain & hardship of what you are going through.
  149. leilane
    Tuesday, June 2nd, 2009
    We will be thinking about your son and your family. Be strong and remember that your blog change peoples life, so think positive (as much as you can), we are with you in our hearts and prayers.
  150. Tuesday, June 2nd, 2009
    This was so touching to read. Normally I lurk in the background, enjoying all your wonderful posts but never comment. However today I wanted to say Thank You for revealing such a personal part of your life.

    My 8yo son was classified by the school's specialist with high functioning ASD so I've been reading and learning about the different types of Autism. I was truly shocked to find that 1 in 4 kids is suspected of having some form of Autism but we're only starting to really hear about it in the media. I was so afraid when we first heard the news but with lots of support and help from all the people around us and his school, we're understanding how to help my son lead a full and adventurous life!

    You are right, you aren't alone! I send prayers and good thoughts to you and your family and hope things go well for you! Good luck!
  151. Kathy
    Tuesday, June 2nd, 2009
    Thanks so much for sharing this. It really touched my heart. Although I have not been affected by autism, I have a child who was diagnosed with juvenile diabetes at age 6. His illness affected our entire family and all the things you posted really do help. Education, Connection to others going through similar things, friends, Gratittude and God really do make all the difference. I'm sorry your family has to go through this, but I have found that some of these experiences are truly "Blessings" and I will keep you all especially your son in my prayers.
  152. Imani
    Tuesday, June 2nd, 2009
    I will keep your family in my prayers.
    Thanks for sharing!
  153. Tuesday, June 2nd, 2009
    Thank you for sharing your difficulties and hopefulness. Prayers and hugs to your family -
  154. Tuesday, June 2nd, 2009
    Thank you for opening your heart to us so eloquently. You'll all be in my prayers.
  155. Tuesday, June 2nd, 2009
    Know that you are not alone---know that God gives us what we can handle, even though we don't always see that--know that you have made a difference in my life. You have brought joy to me by bringing me all your beautiful ideas...and making the smallest thing bring the biggest joy. Just a few weeks ago I logged on as I do everyday to Skip to my Lou and found the cutest little craft for those little pouches and tissue holders...and look at me now selling them on etsy...because of your posting! I am completely addicted to making them now and sharing them with anyone who will take one!! I wish you all the best and I pray that your son has some hopeful news soon. Many thanks for all you do and you are in my thoughts and prayers!
  156. Tuesday, June 2nd, 2009
    You and your family are in my prayers. I love your blog and will wait patiently while your home life returns to "normal".
  157. Sue
    Tuesday, June 2nd, 2009
    My heart and prayers go out to you and your family. I worked in special education for 17 years. During that time I worked with several students that had autism. It is not easy for all involved..the child, the parents or the siblings. Professional support is very essential, but so is the support of friends and family. I will keep you all in my prayers.
  158. Renee C.
    Tuesday, June 2nd, 2009
    I have worked with children with many ASD diagnosis and while I know you struggled with this decision it was one you made with love and with the information that you were ultimately helping your son and the entire family. My thoughts and prayers are with you and your family.